Advance Care Planning For People Living With Dementia And Their Family Caregivers

Advance Care Planning for people living with dementia and their family caregivers

About the Project

This project is a two-year initiative (2020-2021) funded by the Public Health Agency of Canada entitled, ‘Mobilizing and equipping community-based organizations to promote awareness and support for person-centred care for people living with dementia and their family caregivers ‘. The aim is to promote the engagement of people at risk of dementia, people living with early stages of dementia and their family and friends in Advance Care Planning (ACP).

The project is building on the success of an existing community-led Advance Care Planning model developed by BC Centre for Palliative Care for the general public. The project team has developed a set of tools, resources, and training materials to support community organizations deliver ACP activities for people living with early stages of dementia and their family and friends.

Project Plan 

1. Complete an environmental scan and focus group interviews to gather information that informs the development and adaptation of the community-led ACP model.

2. Develop a culturally appropriate, community-led ACP education model for British Columbians living with early stages of dementia and their family members and friends.

3. Pilot the model with four (4) community organizations in BC

4. Refine the finalized model based on evaluation data collected from the pilot

5. Implementation of the model with ten (10) community organizations in BC

6. Knowledge synthesis and spread

 

Project Outputs 

Click here to read the executive summary of the environmental scan completed as part of this project.  

Project Progress

My Wishes, My Care: Advance Care Planning Programs

For people living with early stages of dementia and their family and friends.

Two community-led ACP programs were developed for people living with early stages of dementia and their family and friends – a guided conversation event and a two-part ACP information session. The two programs were designed to complement each other and, ideally, to be taken in sequence. Titled My Wishes, My Care…, the programs are:

1.  A guided conversation event to help participants explore their wishes, values, and beliefs as a first step to preparing a plan for future health and personal care. This event is a preliminary step to beginning the ACP process.

2. A two-part information session to teach participants about the steps of ACP, and offer information and resources to help them get started.

Pilot Phase (October – December 2020)

 

The project entered a new phase in October with the launch of the programs in partnership with four pilot sites in the North Okanagan, Greater Victoria and the Lower Mainland.

For the project’s pilot phase, each of the four community partners have received training from BCCPC and will host a minimum of one guided conversation event and one two-part information session before the end of December 2020.

Representing four distinct communities, the four pilot sites are:

Adult Cognitive Wellness Centre (Langley): Newly launched in Spring 2020, the Adult Cognitive Wellness Centre uses Montessori principles to deliver cognitive, physical, social, spiritual and emotional programs to their clients living with dementia, while also supporting and engaging their caregivers.

Family Caregivers of British Columbia (Greater Victoria): Committed to strengthening the voice of family caregivers and highlighting the significance of their role, the Family Caregivers of BC has a mission to improving the quality of life for family caregivers through support, information and education.

North Okanagan Hospice Society (North Okanagan): While their primary mission is to provide quality end-of-life care to the North Okanagan community, the Society’s REACH program (Resources, Education and Advocacy to Champion Hospice-palliative care) demonstrates their belief that palliative care starts long before people enter hospice. Rather, it starts at home, around a kitchen table, talking to loved ones about end-of-life wishes.

CareRx Vancouver Downtown (Vancouver): More than providing pharmacy services to residents in long term care, retirement homes, hospice homes and group homes in Greater Vancouver, CareRx also focuses on education – their own and their clients’. CareRx is looking ahead to support the increasing number of older adults who wish to age in place.

 

Pilot Events/Sessions

 

Click on the buttons below for more information about the conversation events and ACP information sessions offered by our pilot community partners. Please contact the organizations directly for more information, or to register.

Guided Conversation Event

January 20th (online)
1:00pm – 2:30pm 

ACP Information Sessions (Part 1)

January 27th (online)

1:00pm – 3:00pm

ACP Information Sessions (Part 2)

February 3rd (online)

1:00pm – 3:00pm 

Guided Conversation Event

January 13th (online)
2:00pm – 4:00pm 

ACP Information Sessions (Part 1)

January 20th (online)

2:00pm – 4:00pm

ACP Information Sessions (Part 2)

January 27th (online)

2:00pm – 4:00pm 

Guided Conversation Event

December 14th (online)

10:00am –11:30am  

ACP Information Sessions (Part 1)

December 21st (online)

10:00am – 11:30am 

ACP Information Sessions (Part 2)

December 28th (online)

10:00am – 11:30am 

Guided Conversation Event

October 19th (in-person)

1:00pm – 2:30pm  

 

October 21st (online)

10:30am – 12:00pm 

 

November 9th (online)

10:00am –  11:30am 

ACP Information Sessions (Part 1)

October 28th (online)

1:00pm – 2:30pm 

 

November 18th (online)

10:00am – 11:30am 

ACP Information Sessions (Part 2)

November 4th (online)

1:00pm – 2:30pm 

 

November 25th (online)

10:00am – 11:30am 


This initiative is supported by funding from Public Health Agency of Canada. The views expressed herein do not necessarily represent the views of Public Health Agency of Canada.

Cette initiative bénéficie du soutien de l’Agence de la santé publique du Canada. Les opinions qui y sont exprimées ne représentent pas nécessairement les positions de l’Agence de la santé publique du Canada.