Advance Care Planning For Culturally Diverse Communities

Advance Care Planning for Culturally Diverse Communities

Cultural Adaptations Project

Helping people from culturally diverse backgrounds engage in Advance Care Planning

Partnership opportunity – host Advance Care Planning sessions

Currently available information and resources about Advance Care Planning (ACP) don’t adequately address the specific needs of diverse cultural, religious or language groups. To address this gap, we are adapting and translating BCCPC’s training and toolkit for community-led Advance Care Planning information sessions to be more culturally appropriate and linguistically acceptable for people with a Chinese or South Asian background, who communicate mostly in Cantonese, Mandarin or Punjabi.

Project Plan

  1. Development and testing of a culturally appropriate and linguistically acceptable community-led Advance Care Planning education model for Canadians with a Chinese or South Asian Background
  2. Training module and educational products for health-care providers to enable Advance Care Planning engagement and spread
  3. Knowledge synthesis and spread

Adaptation Process

  • Assess the community’s beliefs
  • Examine curriculum fit with community’s beliefs
  • Adapt Advance Care Planning curriculum

Project Outputs:

  • Community-led public Advance Care Planning sessions toolkit and curriculum updated and evaluated
  • Up to 40 communities using the adapted model to support people from Chinese or South Asian communities to engage in Advance Care Planning.
  • Online training module for health-care provider around cultural considerations related to Advance Care Planning conversations with patients from Chinese or South Asian communities.
  • Evidence of acceptability and efficacy of the culturally adapted model and the health-care provider training module.
  • Recommendations for adaptation process of the model to other diverse populations.

 

Project Progress

Toolkit Adapted and Translated

Between October 2019 and January 2020, we reviewed the Advance Care Planning sessions toolkit and curriculum, and adapted them for the Chinese and South Asian communities. This work was conducted by a working group for each community. The working groups include experts on Advance Care Planning and education, people with experience sharing Advance Care Planning information with the project’s communities, and members of public from the two communities. We also conducted 2-3 focus groups with members of the public from each community to gather a wider range of perspectives from members of the two communities.

South Asian Focus Group, Dec 2019
Chinese Focus Group, Oct 2019

Successful Piloting

We partnered with PICS Surrey and Minoru Seniors Centre to pilot the adapted and translated toolkit in February 2020. We sincerely thank these two organisations for their participation and support in the project. A total of 7 facilitators were trained in how to facilitate the Advance Care Planning sessions, who then facilitated a session in Punjabi and a session in Mandarin for their community members. Feedback from the trained facilitators and public participants of the Advance Care Planning sessions helped us improve the adapted model.

Chinese Facilitator Training, Feb 2020
South Asian Facilitator Training, Feb 2020

Adaptations for the COVID-19 Pandemic – online sessions

Between April and July 2020, we adapted the Advance Care Planning sessions for delivery online, in response to COVID-19 pandemic restrictions. To do this, we used input from 147 members of the Chinese and South Asian communities to adapt materials and conduct five trial online sessions in June and August.

 

Partnership opportunity – Seeking interested community organisations to host Advance Care Planning sessions

We are looking for partner organizations to spread our updated Advance Care Planning education model among South Asian or Chinese communities.

It doesn’t matter if your organization hasn’t provided Advance Care Planning education before, we will provide training and a toolkit of everything you need to host these sessions.

 

Here is all the information you need about this partnership opportunity.

If you’re interested in becoming a partner, please contact:

 

This initiative has been made possible thanks to funding from Health Canada. The views expressed herein do not necessarily represent the views of Health Canada.